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Join A Cure in Sight, an ocular melanoma foundation, in sharing stories + raising awareness for OM patients and their families. Here we share information and insights on treatment, research, and living with ocular melanoma.
Episodes
Thursday Apr 18, 2024
Thursday Apr 18, 2024
In this deeply moving video, Erin recounts her 20-year battle with ocular melanoma, offering insights and hope to those facing similar challenges.
Diagnosed at just 23, Erin's journey through treatments, recurrences, and personal growth illuminates the path of resilience and survival.
Highlights of Erin's Story:
- Early symptoms and the crucial steps leading to her diagnosis. - The impact of treatment, including the innovative approaches that helped her.
- How Erin maintained her mental health and found strength in her community.
- The role of support systems in navigating the emotional and physical challenges of cancer.
This video is a must-watch for anyone touched by cancer, particularly ocular melanoma, offering not just a story of survival but a message of thriving through adversity. #OcularMelanoma #CancerSurvival #Resilience #Hope #SurvivorStory If you or someone you know is facing ocular melanoma, resources and support are available. Check the links below for more information and help.
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved! Highest record for registrations is 306! Who can top it!? Fundraisers have a record of $30K+ in Palo Alto–who can help beat that!?
March 24, 2024, Tampa, FL
https://runsignup.com/Race/FL/Tampa/LookinForACureTampaFL
May 18, 2024, Raleigh, NC
https://runsignup.com/Race/NC/Raleigh/LookinForACureRaleigh
May 19, 2024, Washington DC
https://runsignup.com/Race/VA/ARLINGTON/LookinForACureWashingtonDC
June 8, 2024, Minneapolis, MN
https://runsignup.com/Race/MN/Minneapolis/LookinForACureMinneapolis
July 13, 2024, Palo Alto, CA
https://runsignup.com/Race/CA/PaloAlto/LookinforaCure
July 14, 2024, Seattle, WA
https://runsignup.com/Race/WA/Seattle/LookinForACureSeattle
September 28, 2024, Santa Monica, CA (LA)
https://runsignup.com/Race/CA/SantaMonica/LookinForACureLosAngeles
November 2, 2024, Scottsdale, AZ
https://runsignup.com/Race/AZ/Scottsdale/LookinForACureArizona
December 7, 2024, Houston, TX
https://runsignup.com/Race/TX/Houston/LookinForACureHouston
December 8, 2024, Dallas, TX
https://runsignup.com/Race/TX/Dallas/LookinForACureFortWorth
Races dates and locations subject to change this far out in the year.
Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!!
www.lookinforacure.org
COMING OCTOBER 2024: Eye Believe Survivorship Seminar in Scottsdale, Arizona - Join A Cure in Sight and Dr. Justin Moser from Honorhealth Research Institute for our upcoming survivorship seminar in the sunny state of Arizona! Details on registration coming soon!
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
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Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
Tuesday May 14, 2024
Tuesday May 14, 2024
Welcome to our latest episode where we dive deep into the world of immunotherapy, an innovative approach to cancer treatment that leverages the body’s own immune system to fight cancer. Join us as we explore how immunotherapy offers hope and new options for patients, especially those dealing with conditions like ocular melanoma.
In this episode, we're joined by Lucy Innes, an ocular melanoma patient and PhD researcher, who shares her personal journey and the complexities of immunotherapy. We'll cover everything from the basics of the immune system to advanced treatments that might just change the future of cancer care.
Key Highlights:
- Immune System 101: Understand the fundamental roles of the immune system, how it typically combats illnesses, and its lesser-known but critical function in identifying and destroying cancer cells.
- Introduction to Immunotherapy: What is immunotherapy? How does it differ from traditional treatments like chemotherapy and radiation? Learn about the types of immunotherapy, including immune checkpoint inhibitors and CAR T-cell therapy.
- Personal Journey: Hear Lucy’s firsthand experiences with ocular melanoma, from diagnosis through treatment, and how immunotherapy has played a role in her care.
- Treatment Insights: Delve into the specifics of how immunotherapies are designed to enhance the immune system's ability to fight cancer, the scientific principles behind these treatments, and the latest research advancements.
- Practical Advice: Tips for patients and caregivers on navigating cancer treatment options, with a focus on when to consider immunotherapy and the questions to ask your healthcare provider.
Why Immunotherapy Matters: Immunotherapy represents a paradigm shift in cancer treatment, offering potential benefits over conventional methods by specifically targeting cancer cells while sparing healthy tissue. This episode sheds light on why immunotherapy could be a game-changer for many cancer patients.
Conclusion: Don't miss this informative session packed with expert insights, patient experiences, and hope for those affected by cancer. Subscribe to our podcast for more episodes that help demystify cancer treatments and support patients and their families through their journeys.
Tuesday May 21, 2024
Tuesday May 21, 2024
Find out more at nostorylost.com
Join us in this heartfelt episode of the "I Believe Podcast" where we dive deep with Andrew, the founder of No Story Lost. Discover how a simple family tradition of storytelling transformed into a mission to preserve precious memories for generations. Andrew shares the inspiring journey behind No Story Lost, from recording his grandfather's tales to creating a service that helps others capture and cherish their own family histories.
In This Episode:
- The Inspiration: Learn about the family experiences that inspired the creation of No Story Lost.
- The Impact: Understand the profound impact of preserving personal stories, especially for those facing life's biggest challenges, like cancer.
- The Process: Get an inside look at how No Story Lost captures and immortalizes personal and family stories through their unique service.
- Q&A Session: Hear directly from Andrew as he answers questions about the importance and process of preserving personal histories.
Why This Matters: Capturing personal stories isn't just about remembering the past—it's about enriching future generations and providing comfort and connection through shared history. Whether you're dealing with a terminal illness or just want to preserve your family's legacy, No Story Lost offers a way to keep your memories alive.
Subscribe to our channel for more inspiring stories and practical tips on preserving your own history. If you're interested in No Story Lost’s services, visit their website linked below.
Connect with No Story Lost:
- Website: No Story Lost
- Contact: hello@nostorylost.com
Stay Engaged:
- Like, Comment, and Share this video if you believe in the power of stories!
- Don’t forget to subscribe for more content on personal legacies and community stories.
Thursday Jun 06, 2024
Thursday Jun 06, 2024
In this compelling episode of the Eye Believe Podcast, we are honored to share the story of Amy Reeves Clews, a courageous mother who was diagnosed with ocular melanoma at 20 weeks pregnant. Amy's journey is a testament to resilience, hope, and the power of a mother's love.
After experiencing unusual symptoms like flashing floaters, Amy sought medical advice, only to discover she had a rare form of eye cancer. Despite the devastating news and the complexities of undergoing treatment while pregnant, Amy's determination to protect her unborn daughter never wavered. Her story unfolds through moments of heartbreak, tough decisions, and unwavering support from her family.
Throughout her pregnancy, Amy underwent rigorous treatments, including photodynamic therapy, while constantly worrying about her baby’s health. Her strength was tested as she navigated the uncertainties of cancer treatment during pregnancy, all while dealing with the additional challenges brought on by the COVID-19 pandemic.
Amy's journey didn't end at childbirth. She continued her fight against cancer while caring for her newborn daughter, demonstrating remarkable strength and perseverance. Her story is not just about surviving cancer but also about embracing life with hope and positivity.
Join us as Amy Reeves Clews shares her emotional journey, from the initial shock of her diagnosis to the triumph of giving birth and continuing her battle with cancer. Her story will inspire and uplift, showing that even in the darkest times, there is always a glimmer of hope.
Tune in to hear Amy's powerful testimony and witness her incredible spirit and determination. This episode is a must-watch for anyone seeking inspiration and a reminder of the strength of the human spirit.
Don't forget to like, comment, and subscribe to the Eye Believe Podcast for more inspiring stories of resilience and hope.
Amy also discusses the ongoing impact of her condition, her daily struggles with vision loss, and how she finds strength and positivity through small daily practices, gratitude, and the support of her family and community.
Join us for this heartfelt episode as Amy Reeves- provides invaluable advice and encouragement to others facing similar battles, emphasizing the importance of staying positive, seeking support, and finding joy in the little things.
Read more from Amy's article here at Mummy Star, a nonprofit soley focused on helping expectant mothers navigating cancer: https://www.mummysstar.org/post/amys-story
Thursday Jun 13, 2024
Thursday Jun 13, 2024
Join us in this powerful episode of the Eye Believe Podcast as we share the inspiring story of Tara Ruckman. Tara has faced multiple cancer diagnoses, including subcutaneous melanoma and, most recently, ocular melanoma. Despite these immense challenges, Tara's journey is a testament to strength, resilience, and hope.
In this episode, you'll learn:
- Tara's initial diagnosis and her journey with subcutaneous melanoma
- How she discovered ocular melanoma and the symptoms she experienced
- The treatment decisions she made and the factors that influenced her choices
- How Tara prepared mentally and physically for her enucleation surgery
- The importance of mental health and support systems in her healing process
- Tara's message of empowerment and embracing her identity post-surgery
Tara's story is not just about surviving cancer but also about thriving and finding joy in life despite the challenges. Her experiences offer valuable insights and hope to anyone facing similar battles.
Key moments:
- Initial diagnosis and journey with subcutaneous melanoma (00:00 - 02:32)
- Discovery of ocular melanoma (02:33 - 04:15)
- Treatment decisions and surgery (04:16 - 11:55)
- Mental health and support systems (11:56 - 18:20)
- Tara's message of empowerment (18:21 - end)
Don't forget to like, comment, and subscribe to the Eye Believe Podcast for more inspiring stories of resilience and hope.
#CancerJourney #OcularMelanoma #Resilience #EyeBelievePodcast #TaraRuckman
Don't forget to like, comment, and subscribe to the Eye Believe Podcast for more inspiring stories of resilience and hope.
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
Thursday Jun 27, 2024
Thursday Jun 27, 2024
click picture to watch on YouTube!!!!!!!!!!!
"Welcome to another episode of the Eye Believe Podcast! In this episode, host Megan is joined by Dr. Jose Lutzky from the Sylvester Comprehensive Cancer Center to discuss the unique challenges and solutions for international uveal melanoma patients. Dr. Lutzky provides insights into his melanoma program, the significance of clinical trials, and the comprehensive care available to patients from Central and South America. This episode is a must-listen for anyone seeking to understand more about uveal melanoma and the support available for international patients.
Key Topics:
- Overview of Uveal Melanoma
- Treatment Options and Clinical Trials
- Comprehensive Care for International Patients
- Importance of Early Diagnosis
Subscribe and listen to more episodes for expert advice and inspiring stories.
#EyeBelievePodcast #UvealMelanoma #InternationalPatients #CancerTreatment #DrJoseLutzky #OcularHealth"
Saturday Jul 06, 2024
Saturday Jul 06, 2024
In this episode of the Eye Believe Podcast, we delve into the topic of eye enucleation, offering a detailed guide on how to prepare for this significant medical procedure. We cover:
- An overview of eye enucleation
- Essential pre-surgery steps
- The surgical process explained
- Tips for post-operative care and recovery
- Emotional and psychological support resources
Whether you are undergoing this surgery or supporting someone who is, this episode provides valuable insights and practical advice to help you through the process.
Friday Jul 12, 2024
Friday Jul 12, 2024
Welcome to another inspiring episode of the Eye Believe Podcast! Today, we are joined by Sandy, a dedicated practitioner at Life Spark, who shares her profound insights into the transformative power of Reiki and healing touch therapies, especially for cancer patients. Discover how these holistic practices are making a significant impact on patients' lives by alleviating stress and promoting relaxation.
In this episode, you will learn:
- What Reiki is and how it benefits cancer patients
- The mission and values of Life Spark
- Success stories of cancer patients who have experienced significant improvements through Reiki and healing touch therapies
- The science behind healing touch and its effectiveness in reducing stress
- How Reiki sessions help cancer patients cope with their diagnosis, treatment, and recovery
- Personal experiences and heartfelt testimonials from patients
- The future potential of holistic cancer care and the growing acceptance of complementary therapies in mainstream medicine
Episode Highlights:
- 0:00 - Introduction
- 0:14 - Welcome and Introduction to Sandy
- 1:00 - Overview of Life Spark and Its Mission
- 2:00 - The Role of Reiki in Cancer Care
- 3:30 - Life-Changing Success Stories from Life Spark
- 5:00 - Understanding the Stress Relief Benefits of Healing Touch
- 7:00 - How Reiki Sessions Help Cancer Patients Cope
- 9:00 - Personal Experiences and Heartfelt Testimonials
- 11:00 - The Future and Potential of Holistic Cancer Care
- 12:30 - Closing Remarks and Appreciation
Join us as Sandy shares inspiring stories and valuable insights into the healing journey of cancer patients. Don't miss this enlightening discussion on the powerful benefits of holistic healing practices.
Connect with A Cure in Sight and The Eye Believe Podcast:
- Website: www.acureinsight.org
- Donations: https://acureinsight.org/donate/?v=7516fd43adaa
- Instagram: https://www.instagram.com/acureinsight/
- Facebook: https://www.facebook.com/ACureInSight
- Twitter: https://x.com/ACureInSight1
- LinkedIn: https://www.linkedin.com/company/3108537
Subscribe and Stay Tuned: Don't forget to subscribe to our podcast and leave a review. Your feedback helps us bring more valuable content to our listeners. Thank you for being a part of the Eye Believe Podcast community!
Saturday Jul 20, 2024
Monday Jul 29, 2024
Monday Jul 29, 2024
Navigating a Uveal Melanoma Diagnosis: Expert Insights
Quarter 2 Webinar
Description:
Welcome to an enlightening episode of our webinar series, where we dive deep into the complexities of navigating a Uveal Melanoma diagnosis. In this episode, we are joined by renowned ocular oncologists, Dr. Jesse Berry and Dr. Marlana Orloff who bring their extensive knowledge and experience to the table.
What You'll Learn:
- Understanding Uveal Melanoma: Gain a comprehensive understanding of Uveal Melanoma, including its structures, risk factors, and the importance of yearly dilated eye exams.
- Diagnosis Journey: Discover the step-by-step process involved in diagnosing Uveal Melanoma, including essential tests and imaging techniques.
- Treatment Options: Explore the latest treatment options available, from traditional methods to cutting-edge therapies, and understand the significance of clinical trials.
- Patient Support: Learn how to manage the emotional and practical aspects of living with Uveal Melanoma, including the importance of patient support resources and organizations.
- Future Outlook: Hear about the latest research and advancements in ocular oncology that offer hope for better patient outcomes.