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A Cure In Sight (ACIS) is a nonprofit organization committed to improving the lives of those affected by ocular melanoma. Through education, patient support programs, advocacy, and research funding, ACIS works to raise awareness and accelerate progress toward better treatments and outcomes.
The Eye Believe Podcast, hosted by A Cure In Sight, brings together patients, caregivers, researchers, and medical professionals to share stories, discuss advances in ocular melanoma research, and highlight the strength of the community. The podcast’s mission is to inform, inspire, and give a voice to those impacted by ocular melanoma.
Episodes
Monday Dec 05, 2022
Monday Dec 05, 2022
Join 5 patients as they discuss their ocular melanoma diagnosis, and some of the struggles, and the strange but welcome gifts that have come despite their diagnosis.
Patients participating:
Mike Stansbury - diagnosed Dec 2018, metastatic June 2021
Julie Le Blanc - Diagnosed Sept 2018, metastatic in March 2022
Laura Cunningham - Diagnosed June 2013, metastatic in Dec 2013
Steve Durrant - Diagnosed Spring 2017, NED
Danet Peterson (your host) July 2020, metastatic in Nov 2022
Tune in for an amazing insightful interview.
Monday Dec 05, 2022
Monday Dec 05, 2022
Join Dr. David Reichstein of Tennessee Retina to discuss what to expect in your eye after treatment.
Dr. Reichstein is a graduate of the world's premier Ocular Oncology Fellowship at Wills Eye Hospital, under the direction of Drs. Jerry and Carol Shields. Dr. Reichstein's interests include the diagnosis and management of patients with all types of ophthalmic tumors, including uveal melanoma or nevus, retinoblastoma, vitreoretinal and choroidal lymphoma, vascular tumors of the posterior segment, and choroidal metastases. He also has expertise in the management of anterior segment tumors including conjunctival melanoma, conjunctival or corneal intraepithelial neoplasia, and squamous cell carcinomas of the anterior segment. Dr. Reichstein's therapeutic expertise includes the use of topical and systemic chemotherapy, surgical management of ophthalmic tumors, and radiation using brachytherapy or external beam radiation.
Monday Dec 05, 2022
Monday Dec 05, 2022
In this session, Dr. Reichstein, Dr. Schefler, Dr. Hovland, and Dr. Walter will be discussing "Standards of Care for Uveal Melanoma, are there any?"
Topics addressed include:
- NCCN/TNM Staging & guidelines
-Types of Plaque/Proton Beam Treatment
-Transpupillary Thermotherapy (TTT) alone (and why we shouldn't do it)
Dr. David Reichstein, an ocular oncologist, who studied at the renowned Wills Eye Hospital here from Tennessee Retina.
Dr. Amy Schefler, ocular oncologist and renowned eye cancer researcher from Houston Retina, joining us virtually.
Dr. Peter Hovland, who specializes in vitreoretinal disease & surgery, and ophthalmology, here from Colorado Retina.
Dr. Scott Walter, a practicing ophthalmologist in Hartford, Connecticut and is affiliated with Hartford Hospital.
Monday Dec 05, 2022
Monday Dec 05, 2022
Join Dr. Justin Moser and Dr. Meredith McKean to learn more about the approval of KIMMTRAK and what this means for you as a patient, whether you are HLA-0201 positive and qualify for this treatment drug, or if you do not and wonder what is out there treatment wise for you.
Dr. Moser is a Medical Oncologist who specializes in phase 1 clinical trials, drug development, and cutaneous malignancies. He leads the Melanoma program at HonorHealth Research Institute, and runs one of the only programs dedicated to uveal melanoma in Arizona.
Dr. Meredith McKean received her bachelor's degree from Iowa State University, where the promising athlete ran cross-country and track. McKean completed her fellowship in Hematology-Oncology at the University of Texas MD Anderson Cancer Center. She now serves as the associate director for the Melanoma and Skin Cancer Research Program at the Sarah Cannon Research Institute of Tennessee Oncology.
Monday Dec 05, 2022
Monday Dec 05, 2022
Join Dr. Justin Moser and Dr. Meredith McKean, together with Dr. Sanger to discuss navigating an ocular melanoma mets diagnosis.
Dr. Moser is a Medical Oncologist who specializes in phase 1 clinical trials, drug development, and cutaneous malignancies. He leads the Melanoma program at HonorHealth Research Institute, and runs one of the only programs dedicated to uveal melanoma in Arizona.
Dr. Meredith McKean received her bachelor's degree from Iowa State University, where the promising athlete ran cross-country and track. McKean completed her fellowship in Hematology-Oncology at the University of Texas MD Anderson Cancer Center. She now serves as the associate director for the Melanoma and Skin Cancer Research Program at the Sarah Cannon Research Institute of Tennessee Oncology.
Maureen Sanger, PhD is a psychologist with Tennessee Oncology providing counseling to cancer patients and survivors. She received her doctorate in clinical psychology from Vanderbilt University and trained at MD Anderson Cancer Center. Prior to joining Tennessee Oncology she was an Assistant Professor of Pediatrics at Vanderbilt University Medical Center where she worked with the cancer and sickle cell disease programs.
Monday Dec 05, 2022
Monday Dec 05, 2022
Welcome to Eye Believe 2022! Welcome message from Dr. David Reichstein.
Friday Nov 18, 2022
Friday Nov 18, 2022
A Cure in Sight is joined by Dr. Sapna Patel, MD, of MD Anderson in Texas. She joins in for a discussion on how she guides patients through the decision making process, as well as some of the key things to be aware of as a patient as you are making decisions about navigating your diagnosis.
Sapna Patel, MD, is a board-certified medical oncology physician, Associate Professor, Uveal Melanoma Program Director, Fellowship Program Director, and Director of Online Medicine in the Department of Melanoma Medical Oncology at The University of Texas MD Anderson Cancer Center in Houston, Texas.
ANNOUNCEMENTS:
Steps for Sight Registration is coming! Subscribe to the newsletter to stay in the know!
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
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Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Saturday Nov 12, 2022
Saturday Nov 12, 2022
A Cure in Sight is joined by Allie, diagnosed June 1, 2022 at the age of 26 with a small choroidal melanoma. Tune in to hear her story and some of her coping skills she has leaned into as a psychologist by profession.
I don’t really know how to say this, but I was diagnosed with an incredibly rare eye cancer, choroidal melanoma, last week. Thankfully, we caught it early. There’s a lot of uncertainty and of course shock, grief, sadness, etc. Just last month, I graduated and made a post where I said, “For me, radically accepting pain is what allows me to enjoy my life in spite of the challenging experiences I’ve had and will continue to have.” Little did I know that just three weeks later, I would receive a devastating, confusing, and surreal diagnosis. As per usual, I am leaning into my dialectics (my favorite) and am finding pockets of joy and appreciating the little and big things in my life. I’m letting the tears flow and using all the dark humor and sarcasm to get me through this nightmare. I’m still trying to process it all and make sense of something that truly can never make sense. Thank you to everyone in my life who has been so incredibly supportive this last week. I feel so grateful for all of the love.
Headed into surgery for plaque radiation to hopefully start radiating and killing this stupid tumor! I feel so lucky that I had eye pain, which isn’t typically a symptom of this cancer and may have been due to my dry eye, which brought me to the doctor in the first place. From my doctor, I was referred to a retina specialist whose colleague was convinced I didn’t have cancer but rather had a different diagnosis. I remember the colleague putting his hand on my shoulder and saying, “The good news is it’s not cancer.” Again, feeling so lucky that at the end of the day, the retina specialist decided not to listen to his colleague but rather referred me to a top ocular oncologist “just to be safe and rule out cancer.” Didn’t think I would be diagnosed with cancer but alas, I was. And lastly, feeling grateful that I was able to get the surgery scheduled so quickly, just four weeks after my initial diagnosis.
Happiness Trap (comic or book form)
Connect with Allie here on social media:
Facebook URL: https://www.facebook.com/allison1215123
Instagram handle: allie_dashow37
ANNOUNCEMENTS:
Lookin’ For a Cure TEXAS 5K Walk for Ocular Melanoma
NOVEMBER 5, 2022; 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option available)
Lookin’ For a Cure LA 5K Walk for Ocular Melanoma in memory of Laurie Walters
NOVEMBER 12, 2022
REGISTER here and feel free to bring friends and family along! (virtual options available)
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Saturday Nov 12, 2022
Saturday Nov 12, 2022
In this session, learn what a registry is and what it can tell us with Dr. Armin Afshar from UCSF ocular oncology and one of the investigators of the Insight Registry.
Join the Insight registry below, and be sure to keep updating your surveys.
www.insight.iamrare.org
Dr. Armin Afshar, MD is an ophthalmologist who specializes in treating eye tumors and disorders of the retina and vitreous (the gel-like substance at the back of the eye). He has special expertise in managing ocular surface tumors of the conjunctiva and cornea, as well as intraocular tumors involving the iris, ciliary body, choroid, retina, vitreous or optic nerve.
Saturday Nov 12, 2022
Saturday Nov 12, 2022
A Cure in Sight is joined by Dr. Richard Carvajal for a medical webinar-style discussion on:
- how to understand the data behind a clinical trial?
- What the decision making process can look like for managing surveillance, ahead of metastatic discovery, or after and what components go into that process?
- Recommended scan protocol from uveal melanoma oncology teams and how they differ and why
Come prepared with questions and an enlightening and empowering discussion.
A little about Dr. Carvajal:
"Richard D. Carvajal, MD is an Associate Professor of Medicine at Columbia University Irving Medical Center where he serves as both Director of Experimental Therapeutics and Director of the Melanoma Service within the Division of Hematology/Oncology. He serves as Co-Leader of the Precision Oncology and Systems Biology Program within the Herbert Irving Comprehensive Cancer Center. Dr. Carvajal’s research is focused on the development of novel therapies for patients with melanoma [including uveal melanoma] and other cancers, with the overall objective of controlling and curing these diseases."
ANNOUNCEMENTS:
EYE GIVE for Giving Tuesday is open for registration!
FB fundraising is currently down for all non-profits--help us out by joining the "Eye Give" movement through this link!
Steps for Sight Registration is coming! Subscribe to the newsletter to stay in the know!
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.