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Join A Cure in Sight, an ocular melanoma foundation, in sharing stories + raising awareness for OM patients and their families. Here we share information and insights on treatment, research, and living with ocular melanoma.
Episodes
Saturday Jun 11, 2022
Saturday Jun 11, 2022
A Cure in Sight is joined by fellow OM patient, Clay Butler, diagnosed with a choroidal ocular melanoma on New Year’s Eve, 2021. He opted for enucleation on 2/22/22.
In this episode, Clay shares his story, including the discovery and diagnosis of his eye tumor, the treatment options he weighed and why, his enucleation journey thus far, and what is his focus presently.
He shares empowering mindsets that help in navigating many phases of this diagnosis; one such thought being the question: What am I missing out on, vs what I can DO about this?
His episode is jam packed with insights and ideas.
You can get to know Clay a little more through some of his work in the links below, and connect with him on Facebook, or Instagram (@twilight.ninja).
ANNOUNCEMENTS:
Save the date for our Eye Believe Survivorship Seminar in Nashville!!
October 13-15! Virtual is only 14-15. REGISTER HERE!
*********
Be sure to follow us on Facebook, Twitter, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. LINKS TO PAYPAL OR VENMO
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Agora Media.
Thursday Jun 23, 2022
Thursday Jun 23, 2022
A Cure in Sight is joined by a fellow cancer survivor, Terri Wingham. Terri is the CEO and Founder of A Fresh Chapter (AFC). She believes that people are not defined by the most difficult parts of their story and she is passionate about helping others redefine and reclaim their lives—whether living with or beyond cancer. Terri is a committed global health advocate who also loves photography, travel, hiking, and any opportunity to create a meaningful connection with others.
Connect with them on Facebook: A Fresh Chapter
Or on instagram: https://www.instagram.com/afreshchapter/
You can register for the upcoming empower workshops at the link below, on a first come first serve basis:
https://afreshchapter.com/empower-registration/
Application for the Ignite Experience closes on June 28th! See the site for details and application process!
https://afreshchapter.com/ignite/
ANNOUNCEMENTS:
Save the date for our Eye Believe Survivorship Seminar in Nashville!!
October 14-15. REGISTER HERE! (Welcome reception for in person attendees on October 13, 6:00 PM)
*********
Be sure to follow us on Facebook, Twitter, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. LINKS TO PAYPAL OR VENMO
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Agora Media.
Saturday Jul 09, 2022
Saturday Jul 09, 2022
A Cure in Sight is joined by fellow OM patient, Kenny Rains, from the "OM Mancave" , who was diagnosed with a choroidal ocular melanoma August 31st of 2021.
In this episode, Kenny shares his story, including the discovery and diagnosis of his eye tumor, the treatment options he weighed and why, with a specific emphasis on his mental health journey..
Here’s a preview of his interview:
“It all started when I noticed that my vision was getting blurry in June. I thought that my prescription for my eye was changing so I went to the local optometrist and they changed my prescription. I did this a few times but then I started to notice my vision was distorted. After some urging from friends I went to the local ophthalmologist and that’s when I saw the grid and noticed just how bad my vision had become. They dilated my eyes and that’s when they got a picture of my tumor located right on the macula and eating it’s way into the fovea. Each day I felt like I was losing more vision until I got the radiation and I went almost completely blind in my right eye. It was an extremely difficult week of treatment but they were able to save my peripheral vision in my right eye.
The human body is incredible and I quickly became left eye dominant and my brain managed to compensate so I still retain almost a full field of view with both eyes open. I can still do virtually everything I did before and try to make the most of every day. This disease has shown me that each day is a gift and we should treat it as such. Cancer has been brutal but it has also been a gift. As I have gone blind my eyes have been opened to the reality that tomorrow is not promised and yesterday is gone so today is what we have.”
You can get to know Kenny more by connecting with him on Facebook or Instagram.
Find the Ocular Melanoma Mancave for patients HERE on Facebook.
ANNOUNCEMENTS:
Lookin’ For a Cure Arizona 5K Walk for Ocular Melanoma
COMING UP September 24, 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option coming soon)
Eye Believe Survivorship Seminar in Nashville, Tennessee
October 14-15. REGISTER HERE! (Welcome reception for in person attendees on October 13, 6:00 PM)
(Virtual and in person options.)
Lookin’ For a Cure TEXAS 5K Walk for Ocular Melanoma
NOVEMBER 5, 2022; 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option available)
Email contact@acureinsight.org for questions regarding the event!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Agora Media.
Thursday Jul 14, 2022
Thursday Jul 14, 2022
Join A Cure in Sight on The Eye Believe Podcast and various research experts and clinicians who attended American Society of Clinical Oncology (ASCO) Conference early June 4-6, 2022, as well as the 20th Congress of the International Society of Ocular Oncology (ISOO), June 17-21, 2022. A Cure in Sight attended both to gather updates in research and present a united, collaborative front for the sake of patient advocacy in the field of ocular melanoma.
In this episode, you’ll hear from the experts about what’s new in ocular melanoma and uveal melanoma. You’ll also hear news of new clinical trials, and upcoming expanded access programs for treatments for metastatic uveal melanoma.
Tune in for updates from:
Jerry Wu with Ascentage Pharma, focused on an abstract from Dr. Meredith McKean of the Sarah Cannon Cancer Center in Nashville discussing a novel cancer treatment for uveal melanoma called APG-115. Search “APG-115 melanoma” on ascentage.com, or listed on clinicaltrials.gov.
Dr. Johnny John from Delcath discusses the presentation of data from the FOCUS Trial at ASCO and the opening of Delcath’s Expanded Access Program for patients with Metastatic Ocular Melanoma. Information on EAP sites may be found on https://delcath.com/clinical-trials/expanded-access-program/
Karin Hellsvik with Foghorn Therapeutics, discussing uveal melanoma patient advocacy, as well as the existing study for uveal melanoma patients, found by searching FHD-286 on clinicaltrials.gov.
Dr. Justin Moser with HonorHealth Research and Innovation Institute in Scottsdale AZ, discussing a new West Coast clinical trial for metastatic uveal melanoma patients. Info on this trial can be found here:
https://clinicaltrials.gov/ct2/show/NCT05004025
Danet Peterson, sharing about her personal ocular melanoma journey in a brief ASCO interview with i3Health.
Dr. Cadmus Rich with Aura Biosciences discussing the AU-011 (belzupacap serotalocan) program, including an upcoming pivotal study for primary choroidal melanoma treatment. Search AU-011 on clinicaltrials.gov for more info.
Dr. Johnny John from Delcath along with Dr. Ellen Kapiteijn and Dr. Thaïs Tong from the Leiden University Medical Center discusses the presentation of data from the Chopin Trial in which Delcath’s percutaneous hepatic perfusion treatment is combined with immunotherapy for patients with Metastatic Ocular Melanoma. Preliminary data from the trial was presented at the ASCO conference and was also presented at the ISOO conference.
Steven Katz, Chief Medical Officer at TriSalus Life Sciences discussing early safety data from the PERIO-01 clinical study. See www.periotrial.com for more info.
ANNOUNCEMENTS:
Lookin’ For a Cure Arizona 5K Walk for Ocular Melanoma
COMING UP September 24, 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option coming soon)
Eye Believe Survivorship Seminar in Nashville, Tennessee
October 14-15. REGISTER HERE! (Welcome reception for in person attendees on October 13, 6:00 PM)
(Virtual and in person options.)
Lookin’ For a Cure TEXAS 5K Walk for Ocular Melanoma
NOVEMBER 5, 2022; 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option available)
Email contact@acureinsight.org for questions regarding the event!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Agora Media.
Friday Jul 29, 2022
Friday Jul 29, 2022
A Cure in Sight is joined by rare, iris melanoma survivor, Ron Cribb.
Ron is from Auckland, New Zealand, and was diagnosed at age 48 with an iris melanoma in September of 2021. He had a very unique procedure done where a portion of the iris (the colored section) of his eye was surgically removed, and he has now spent 9 months adjusting to different vision, as well as a prosthetic iris to cover what is literally a hole in his eye. He hopes by sharing his journey to connect with even just one other patient who has experienced both iris melanoma, and this unique procedure for removal of the tumor.
Rob continues living fully with his family, refusing to sweat the small stuff along the way.
You can find him on Facebook: https://www.facebook.com/ron.cribb
Or in the Man-Cave Facebook Group for ocular melanoma patients: https://www.facebook.com/groups/474291186483865/?ref=share
ANNOUNCEMENTS:
Save the date for our Eye Believe Survivorship Seminar in Nashville!!
October 14-15. REGISTER HERE! (Welcome reception for in person attendees on October 13, 6:00 PM) We hope to see you there!
*********
Be sure to follow us on Facebook, Twitter, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more! Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure. LINKS TO PAYPAL OR VENMO
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Agora Media.
Sunday Aug 07, 2022
Sunday Aug 07, 2022
A Cure in Sight is joined by fellow OM patient, Jackie Stiles, WNBA basketball player who was diagnosed in December 2017 with ocular melanoma.
Jackie Stiles is one of the most renowned basketball players in the history of the women's game. From her roots in Claflin, Kansas, she led the country in scoring. Then to Southwest Missouri State University, she rewrote the NCAA women's basketball record books en route to leading the Lady Bears to the 2001 Final Four. Finally to a professional career in the WNBA, Jackie has inspired and impacted millions.
Here’s a sneak peek into her story:
“I noticed sometime in October that I was not seeing very well, especially at night. I had Lasik eye surgery done in 2003. I had always heard that after 10 years you sometimes need a touch up. While I was home for Thanksgiving, I asked my mom, who is a school nurse, to check my vision. My left eye was 20/40 and my right eye was 20/30. She told me I should probably go to the eye doctor. Then I noticed in practices that I had to really focus in order to catch a ball coming from across the court. My depth perception seemed off. This started to bother me.
I had not signed up for vision coverage on my insurance this year, so I thought maybe I would wait until the following year to go see the doctor.
I decided to flip a coin.
I know this sounds crazy but I have a system of flipping best two out of three when I cannot decide on something. It told me to go to the eye doctor.”
Tune in for the rest!
Head to www.jackiestiles.com to connect with Jackie directly. Stay tuned for her life documentary to release, August 30 on Amazon Prime; The Jackie Stiles Story.
A few highlights from Jackie’s interview:
3 things you can focus on as a new patient in this diagnosis:
1. Focus on what you can control amid all the uncertainty
- Focus on loving others, and accepting love from others; and when possible, try to do something for someone else–the act of showing up with purpose to this diagnosis makes all the difference in how it feels to be on this journey.
- Get back to your everyday life the best you can, despite the changes–don’t let this diagnosis take up more space than it deserves!
Jackie’s daily questions to herself are “did I live? Did I love? Did I make a difference?
ANNOUNCEMENTS:
Lookin’ For a Cure Arizona 5K Walk for Ocular Melanoma
COMING UP September 24, 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option coming soon)
Eye Believe Survivorship Seminar in Nashville, Tennessee
October 14-15. REGISTER HERE! (Welcome reception for in person attendees on October 13, 6:00 PM)
(Virtual and in person options.)
Lookin’ For a Cure TEXAS 5K Walk for Ocular Melanoma
NOVEMBER 5, 2022; 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option available)
Email contact@acureinsight.org for questions regarding the event!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Agora Media.
Friday Aug 12, 2022
Friday Aug 12, 2022
A Cure in Sight is joined by Dr. Aparna Rama from Phoenix Children’s Hospital. In connection with Children's Eye Health Month and National Eye Exam month, we are discussing children's eye health and eye exams on this special episode.
Points of discussion in this episode include:
- Importance of children’s eye examination – need for timely examination and management
- Myopia and refractive error – increasing incidence
- Strabismus (eye misalignment)
- Eye safety
- Electronic use and kids eye health
- White eye reflex – retinoblastoma. Importance of early detection
- How are pediatric eye examination conducted
Dr. Aparna Ramasubramanian is the medical director of the Phoenix Children's retinoblastoma program. An expert in the field of ocular oncology in the United States, Dr. Ramasubramanian has very unique training as a dual fellowship-trained physician in both pediatric ophthalmology and ocular oncology. Since coming to Phoenix Children's, Dr. Ramasubramanian has significantly grown the multidisciplinary program. She treats patients from not only from Arizona and the Southwest, but also children and families from across the country who travel to Phoenix Children's for their ongoing specialty care.
Dr. Ramasubramanian is the author of the leading textbook on retinoblastoma and the program developer for the `Cure Retinoblastoma' campaign run by the Children's Eye Foundation. She received the American Academy of Ophthalmology Achievement Award in 2018 and the Knights Templar Research Award for her research in retinoblastoma.
ANNOUNCEMENTS:
Lookin’ For a Cure Arizona 5K Walk for Ocular Melanoma
COMING UP September 24, 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option coming soon)
Eye Believe Survivorship Seminar in Nashville, Tennessee
October 14-15. REGISTER HERE! (Welcome reception for in person attendees on October 13, 6:00 PM)
(Virtual and in person options.)
Lookin’ For a Cure TEXAS 5K Walk for Ocular Melanoma
NOVEMBER 5, 2022; 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option available)
Lookin’ For a Cure LA 5K Walk for Ocular Melanoma in memory of Laurie Walters
NOVEMBER 12, 2022; Registration details coming soon!
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Friday Aug 19, 2022
Friday Aug 19, 2022
A Cure in Sight is joined by Dr. Tim Murray, an ocular oncologist with over 30 years in the field of treating primary tumors (eye tumors) of ocular melanoma to discuss:
Small Choroidal Melanoma: Advances in Treatment with Laser.
Timothy G. Murray, MD, MBA is currently the Founding Director/CEO of Ocular Oncology and Retina of Miami Florida. Dr. Murray’s early academic career was focused on the development of an integrated Ocular Oncology service beginning at the Bascom Palmer Eye Institute, Sylvester Comprehensive Cancer Center. In 2012, Dr. Murray founded the Ocular Oncology and Retina Center in Miami, Florida, and has had 10 years in private practice.
Dr. Murray continues as Tenured Professor Emeritus in Ophthalmology and Radiation Oncology with the Bascom Palmer Eye Institute/Sylvester Comprehensive Cancer Center.
Dr. Murray’s focus on founding the private Ocular Oncology and Retina Center was related to his
ongoing pursuit of excellence in clinical care particularly targeted on advanced imaging and treatment technologies. Dr. Murray’s Ocular Oncology and Retina Center continues to provide International, National and Regional care for patients with life- and sight-threatening complex eye disease.
His interview is chalk full of insights and updates in research in the field; referencing a few key studies presented at the 2022 ISOO conference this summer about the importance of early detection of eye melanomas, early and effective treatment of those melanomas, yielding better prognosis for patients, regardless of their genetic expression.
He shares insights for what type of comprehensive eye exams are most important for detection, and concludes the conversation by breaking down the laser treatment therapy option for small melanomas. The pros and cons are explored, as well as the types of tumors best suited for this emerging eye treatment.
LIST OF OCULAR ONCOLOGISTS DR. MURRAY WOULD REFER TO ASIDE FROM HIMSELF
ANNOUNCEMENTS:
Lookin’ For a Cure Arizona 5K Walk for Ocular Melanoma
COMING UP September 24, 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option coming soon)
Eye Believe Survivorship Seminar in Nashville, Tennessee
October 14-15. REGISTER HERE! (Welcome reception for in person attendees on October 13, 6:00 PM)
(Virtual and in person options.)
Lookin’ For a Cure TEXAS 5K Walk for Ocular Melanoma
NOVEMBER 5, 2022; 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option available)
Lookin’ For a Cure LA 5K Walk for Ocular Melanoma in memory of Laurie Walters
NOVEMBER 12, 2022; Registration details coming soon!
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Friday Aug 26, 2022
Friday Aug 26, 2022
A Cure in Sight is joined by fellow OM patient, Lori Jones, who was diagnosed with a choroidal ocular melanoma in June of 2016. She developed metastatic spread in August of 2019. Tune in to hear more about her journey with an integrative metabolic approach to manage her metastatic spread.
“In June of 2016 I was diagnosed with uveal melanoma. There was a large 10 mm tumor in the Choroid of my eye. Within 3 weeks I had radiation plaque therapy. The treatment was successful and the tumor was dead. Through genetic testing of the tumor, I learned that I had a moderate chance of metastasis.
It took me about 2.5 years to be ready to prepare my body for that metastasis. My sister was urging me to talk with a friend who helped her husband use an integrative approach while fighting brain cancer.
I did, and this led me to reading The Metabolic Approach to Cancer by Nasha Winters and Jess Higgins and Radical Remission: Surviving Cancer Against All Odds by Kelly Turner. I started making adjustments immediately.
Six months later, in August of 2019, I was told I metastasized.
What I appreciate most about this approach is that the focus is on LIVING. It is about being healthy and happy. Ironically, I am healthier than I have been in over 20 years. It is about enjoying life and treating your body right. It is about enjoying the earth and feeling the connection to our universe. It is about resolving and letting go of old pain, anger, resentment and moving forward emotionally. I often think, “What if I get away with treating my cancer this way?”
It feels like I am cheating. As far as I know, I am the only person in the US fighting Uveal Melanoma metastasis this way. That’s a little scary and sometimes exhilarating. It makes me want to scream it from the mountain tops and inform people that there IS another way.”
Things to keep in mind from this episode:
1. Consider reading the books referenced above as a preface to learn more.
- If you do embark upon this journey, seek out help from trained physicians who can link up with your oncology team and create the best unique care plan for your body and your genetic make up.
Head to https://mtih.org/ to connect directly with Dr. Nasha Winters, author of The Metabolic Approach to Cancer, and with members of her practitioner team across the country.
You can connect directly with Lori Jones on Facebook here.
ANNOUNCEMENTS:
Lookin’ For a Cure Arizona 5K Walk for Ocular Melanoma
COMING UP September 24, 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option coming soon)
Eye Believe Survivorship Seminar in Nashville, Tennessee
October 14-15. REGISTER HERE! (Welcome reception for in person attendees on October 13, 6:00 PM)
(Virtual and in person options.)
Lookin’ For a Cure TEXAS 5K Walk for Ocular Melanoma
NOVEMBER 5, 2022; 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option available)
Lookin’ For a Cure LA 5K Walk for Ocular Melanoma in memory of Laurie Walters
NOVEMBER 12, 2022
REGISTER here and feel free to bring friends and family along! (virtual options available)
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Thursday Sep 08, 2022
Thursday Sep 08, 2022
A Cure in Sight is joined by Lindsay (Lind-SAY) Brown here on the Eye Believe Podcast to discuss what it’s like to be on the Receiving End of Safe Surgery.
Here's a glimpse into her journey so far:
"The day after I returned from a family vacation in San Diego, CA back to Minnesota I went to the eye doctor. I thought I had been experiencing optical migraine symptoms-- blurry double vision, aura, shadow. At my appointment, he was surprised at how much my prescription had changed and I mentioned to him the slow-motion shooting star that I had been seeing for nearly a year and his expression changed at that moment. This was the day I found out my life was about to change in big ways.
Reality with OM is sometimes hard to grasp. What I do know is that it's unfair to have to try and process this type of diagnosis while preparing for the life-changing treatments that are available for it in such a short amount of time. There was a period of two weeks between diagnosis of OM and my enucleation surgery. What I also know is that I am also grateful for the skilled surgeons and the attention to detail of the Sterile Processing staff in hospital and ambulatory surgery settings. I put my life in their hands when I underwent enucleation surgery and I want more people to understand the behind-the-scenes heroes in safe surgery."
Tune in for a unique story!
Her favorite book she shared is “Think Again” by Adam Grant, and the band she tunes into for happy music is Seryn.
You can connect with Linds here on Instagram or Facebook.
ANNOUNCEMENTS:
Lookin’ For a Cure Arizona 5K Walk for Ocular Melanoma
COMING UP September 24, 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option coming soon)
Eye Believe Survivorship Seminar in Nashville, Tennessee
October 14-15. REGISTER HERE! (Welcome reception for in person attendees on October 13, 6:00 PM)
(Virtual and in person options.)
Lookin’ For a Cure TEXAS 5K Walk for Ocular Melanoma
NOVEMBER 5, 2022; 8 AM
Register here and be sure to bring friends and family to walk with us! (Virtual option available)
Lookin’ For a Cure LA 5K Walk for Ocular Melanoma in memory of Laurie Walters
NOVEMBER 12, 2022
REGISTER here and feel free to bring friends and family along! (virtual options available)
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.