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Join A Cure in Sight, an ocular melanoma foundation, in sharing stories + raising awareness for OM patients and their families. Here we share information and insights on treatment, research, and living with ocular melanoma.
Episodes
Monday Dec 05, 2022
Monday Dec 05, 2022
Join fellow omie, Anne Osborn, as she helps patients navigate "What we can expect of our friends after an OM diagnosis."
Welcome our friend Anne Osborn helping us to understand What we can expect of our friends after an OM diagnosis.
Anne Osborn, Author, as a teen grew up in the shadows of OM when her mother died of OM. Forty years later, she was diagnosed with OM, Class 2.
Anne spent her career in human services, trained as a psychotherapist. Her specialties include initially being a children’s therapist specializing in needs impacting the ability to learn in education. Simultaneously she began leading an emergency team for law enforcement and fire personnel over nearly three decades, ‘when bad things happen to them, we go in’.
Managing her stress was with long distance, both in running and bicycling. Though now, as a Master Gardener time is spent in Nature. Her passion outside of family and friends includes travel, writing and being of service.
Her book, Coping with Ocular Melanoma: A Toolbox is published with proceeds going to ACIS.
Monday Dec 05, 2022
Monday Dec 05, 2022
In this session, fellow ocular melanoma patient Dr. Terry Watson teaches how to use the telling of your story to aid in the healing journey after a traumatic diagnosis.
Dr. Terry Watson is a graduate of the University of Louisville School of Dentistry and the owner of Midtown Smiles here in Nashville, Tennessee. He received specialized training in cosmetic dentistry, dental implants, orthodontics, and facial pain therapy. He serves on the faculty for the Tennessee College of Applied Technology’s Dental Assisting Program and has regularly received the Best Dentist Award. Dr. Watson has a passion for improving his patients lives through cosmetic dentistry and enjoys building real relationships with his patients. Diagnosed with choroidal melanoma in his right eye in 2017, Dr. Watson found himself on the other side of the doctor-patient encounter. Upon beginning his treatment, Dr. Watson found help in journaling his journey. He finds purpose in giving back to the community and is an active member of Kiwanis International and a 26-year member of the AWANA Clubs of America. He cherishes time with his wife and two daughters and in his free time is likely to be found outdoors hunting or fishing. Dr. Watson is driven to not let his diagnosis slow him down and hopes that sharing his story will help current and future patients with ocular melanoma.
Thursday Dec 15, 2022
Thursday Dec 15, 2022
A Cure in Sight is joined by Alec Mackenzie, a patient diagnosed 3 years ago with ocular melanoma. Alec recently participated in the #lookinforacure walk for OM in Santa Monica and was the top fundraiser of the event! We're so excited to have him on live to share his journey and why he started "The One-Eyed Cooking Show."
Alec’s story:
“I had absolutely no warning in terms of diagnosis. I’m not one of those people who had any symptoms. Things were fine, we went away for a long weekend, and on that Sunday morning I woke up half blind in one eye. It just happened overnight with no warning. I thought it was pink eye, but the next day I went to the doctor who instantly referred me to an ocular oncologist once he saw what was going on. I was officially diagnosed the next day with a very large OM tumor. It turns out it had grown so large that it had detached my retina partially, and that’s why I could only see through half of my eye. I had the eye enucleated about three weeks later. That was just over three years ago.
These days I am trying to lead as normal a life as possible with my monocular vision. I am a full-time eighth grade English teacher, and I have two kids who are 16 and 10. I have a very supportive husband who is there through the emotional ups and downs, scan days, doctors appointments, etc.
A few months after my diagnosis, I realized how poorly I had been treating my body. I don’t think that’s what caused the cancer, but it certainly didn’t help. I was eating too much junk food, not taking care of my sleep habits, not dealing with my own mental health, and not getting any exercise. I made the decision to overhaul my lifestyle, get back into running little by little, and try out eating 100% vegan.
After a few months of eating vegan, I realized that just buying vegan foods from the frozen section was just as unhealthy as eating the regular animal-based products, so I started finding recipes online that were only made from fresh, healthy, vegan ingredients. I started posting silly stuff on Facebook about me spilling things or cutting in crooked lines while I cooked those recipes, but people seemed very focused on the actual recipes themselves. That started me posting what I was cooking on Facebook and linking the recipe I had found online.
That turned into my friends and family telling me that I should make some cooking videos and other content around what it’s like to have OM, what OM is, etc. I started the One-Eyed Cooking Guy to show people how easy it is to cook healthy, delicious vegan meals…even if it’s only once or twice a week! Mixed into the recipe videos I also add in content about OM so people can be aware, and I also throw in some silly, stupid short things because I want people to know I have a sense of humor about it all as well.”
Tune in and don’t forget to subscribe, share, and donate below if you can to keep our podcast going!
ANNOUNCEMENTS:
Steps for Sight Registration is coming! Subscribe to the newsletter to stay in the know!
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Thursday Dec 15, 2022
Thursday Dec 15, 2022
A Cure in Sight is joined by Dr. Marlana Orloff, MD, for a brief but highly informative discussion on liver-directed therapies when navigating metastatic disease.
Dr. Marlana Orloff is an associate professor of medicine and medical oncologist at Thomas Jefferson University Hospital – Sidney Kimmel Cancer Center in Philadelphia, PA.
In this discussion, Dr. Orloff shares a few slides (you can find those attached at the link below!) talking about the different types of LDT (liver directed therapies) and how they are used, how effective they are proving in certain cases, and also takes about 10 minutes at the end to answer questions!
Get ready for a wild ride but it’s so exciting to see there really are SO many options out there for treatment of this disease.
All we want for Christmas is a cure omies–let’s be sure to share and ask our communities for donations to ACIS to help create that reality for as many patients as possible!
ANNOUNCEMENTS:
Steps for Sight Registration is coming! Subscribe to the newsletter to stay in the know!
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Thursday Dec 15, 2022
Thursday Dec 15, 2022
2 part session:
Join the following three physicians as they discuss new advances in treatment of uveal melanoma of the eye. This session was sponsored in part by Aura Biosciences.
They discuss the following:
-RADIATION RETINOPATHY
-Pars plana vitrectomy (PPV) with diode
-ENDORESECTION
-ADVANCES IN TREATMENT OF THE EYE (Aura presentation)
Dr. Scott Walter, a practicing ophthalmologist in Hartford, Connecticut and is affiliated with Hartford Hospital.
Dr. David Reichstein, an ocular oncologist, who studied at the renowned Wills Eye Hospital here from Tennessee Retina.
Dr. Peter Hovland, who specializes in vitreoretinal disease & surgery, and ophthalmology, here from Colorado Retina.
At Aura, our mission is to develop a new class of oncology targeted therapies that deliver meaningful therapeutic benefit to a range of cancer indications with high unmet need in which we believe we can establish a new standard of care. We are driven by our passion and commitment to science and the patients battling cancer who are relying on us to pioneer these new therapies.
Second half of episode: Understanding Genetics Testing with Castle Biosciences
Join Dr. Reichstein, Dr. Hovland, and Dr. Walter for a discussion on genetics in uveal melanoma.
This session is brought to you by Castle Biosciences.
Castle Biosciences develops and commercializes diagnostic and prognostic tests for dermatologic cancers. These tests provide clinically actionable, tumor-specific genomic information to enable more accurate treatment plan decisions. They believe that the traditional approach to developing a treatment plan for dermatologic cancers using clinical and pathology factors alone is inadequate, and can be improved by incorporating personalized genomic information.
Monday Dec 19, 2022
Monday Dec 19, 2022
A Cure in Sight is joined by Greg Hobbs, aka the one-eyed fly guy. He is a renowned disc golfer who has refused to let being one-eyed hold him back from playing the game he loves, while sharing about OM in the process!
Here’s a little of Greg’s story—we’re excited to chat with him this next week!
“July 17, 2013 I noticed my vision was a little weird. I went to my eye doctor on Thursday and he sent me to a specialist on Friday. He saw it and said he wanted it out that day. I wanted a second opinion.
I went to the second opinion on Monday and he said the 1st doctor was correct. So I went to a surgeon on Tuesday, talked with them and got the surgery for eye removal on Wednesday.
I got the results after the eye was sent off to the laboratory that it was a stage 4. I was lucky everything worked out for me.
Today, I'm 9 years cancer free.”
Tune in and don’t forget to subscribe, share, and donate below if you can to keep our podcast going!
ANNOUNCEMENTS:
Steps for Sight Registration is coming! Subscribe to the newsletter to stay in the know!
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Thursday Dec 22, 2022
Thursday Dec 22, 2022
STEPS FOR SIGHT 2023 is now open!
www.charityfootprints.com/SFS is where to go to get started!
Tune in for what the movement is about, and how you can get involved!
Our challenge to you? Register! And then call or text at LEAST one other OM friend to encourage them to join your team or create their own!
Grab your friends and Family and let’s walk towards a cure for Ocular Melanoma! We are challenging you to join individuals from around the world by taking 7,000 steps every day in the month of January, with each step representing the 7,000 Ocular Melanoma patients that are diagnosed yearly worldwide. Walk with us not only for a healthier start to your new year, but also for progress in Ocular Melanoma research! Currently there is no cure, but with your help, we could move closer to finding one. As you participate in Steps for Sight, every step you take will get us closer to funding the critical research needed for a cure.
A Cure In Sight is partnering with the Melanoma Research Alliance (MRA) in 2023, to maximize the benefits from the funds raised. The money we raised last year will be matched by MRA to fund a 2-year research grant for Ocular Melanoma. Grant proposals have been received and are currently undergoing the MRA’s meticulous grant review process. Once proposals have been approved, A Cure In Sight will work with MRA to jointly issue the grant award and make the announcement in Spring 2023. This year with your help, we can fund another actionable research project exclusively for Ocular Melanoma
ANNOUNCEMENTS:
Steps for Sight Registration is open!
Register at www.charityfootprints.com/SFS
Give the gift of YOUR unique OM story by joining the INSIGHT Registry today and completing your first survey! Head to insight.iamrare.org to get started or continue your surveys!
Subscribe to the newsletter to stay in the know!
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Friday Jan 06, 2023
Friday Jan 06, 2023
A Cure in Sight is joined by Reagan Lambert, an omie hailing from Horseshoe Bay, Texas, who was diagnosed in October 2016 with choroidal melanoma. He shares some incredible insights on making meaning during this diagnosis, as well as how his faith in god to come allows him to live fully.
“In October of 2016, I made an appointment with my Optometrist to check flashes I was experiencing in my right eye. After the exam, he said it looked like I had a retina tear. He wanted to make sure, so he sent me to a retina specialist in Austin Texas for additional tests. After a few tests, they determined that I could possibly have an eye tumor, but they wanted to send me to another of their offices for further testing with more specialized equipment.
It was then determined that I had a Choroidal Melanoma. I had heard of and actually had a skin melanoma on my back but had never heard of this kind of cancer. They told me what needed to be done and what the procedure would be. They said that they could do the procedure. I asked them how many they had done? I would be their first. That set in motion my search for the person to do the procedure. After some really cool things fell into place, we ended up in Philadelphia.”
Tune in to hear more!
ANNOUNCEMENTS:
Steps for Sight Registration is now open! Join us this month to take steps for ocular melanoma and raise over 100K for research! Start your team today--it's not too late to join us!
www.charityfootprints.com/SFS
Eye on Mental Health 2023 is now open for registration! Head to the site below to register!
Register at https://tinyurl.com/eyeonmentalhealth23
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Friday Jan 13, 2023
Friday Jan 13, 2023
The Eye Believe Podcast host, Danet Peterson, shares tips for navigating triggering dates throughout your diagnosis.
ANNOUNCEMENTS:
Steps for Sight Registration is open! It’s not to late to join us this month!
www.charityfootprints.com/SFS
Eye on Mental Health 2023 is now open for registration! Head to the site below to register!
Register at https://tinyurl.com/eyeonmentalhealth23
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Tuesday Jan 24, 2023
Tuesday Jan 24, 2023
A Cure in Sight is joined for a webinar titled: A Living Library for Uveal Melanoma with Dr. Lauren Dalvin, M.D.
"Uveal melanoma is the most common intraocular cancer in adults. Despite successful treatment of the eye tumor, up to 50% of patients with uveal melanoma will eventually develop metastatic disease. Unfortunately, there are limited effective treatment options once this cancer has spread. Thus, there is an urgent need for new, personalized therapies to improve survival for patients with uveal melanoma.
We have addressed a major barrier to uveal melanoma research, a lack of representative human disease models, by creating a unique biobank of patient-derived organoids. Organoids are three-dimensional models which simulate cancer behavior in the laboratory and can be used to study cancer biology and response to treatment. In both patients and in our laboratory, we find that each melanoma is unique. Using the collection of organoids in our lab, we will be able to study unique molecular signatures and identify personalized treatments for this cancer. Today we’ll talk about how we created these tiny tumor models and show you what it looks like to grow uveal melanoma in the lab."
Dr. Lauren A. Dalvin is a full-time Ocular Oncologist and Associate Professor of Ophthalmology with a joint appointment in Medical Oncology at Mayo Clinic, Rochester, MN.
ANNOUNCEMENTS:
Steps for Sight Registration is open! It’s not to late to join us this month!
www.charityfootprints.com/SFS
Eye on Mental Health 2023 is now open for registration! Head to the site below to register!
Register at https://tinyurl.com/eyeonmentalhealth23
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.