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Join A Cure in Sight, an ocular melanoma foundation, in sharing stories + raising awareness for OM patients and their families. Here we share information and insights on treatment, research, and living with ocular melanoma.
Episodes
Friday Jan 27, 2023
Friday Jan 27, 2023
Join Danet, the Eye Believe Podcast Host, to discuss unrealistic timelines in a cancer diagnosis. Can you relate!?
Make sure to share this episode with another omie today, and if you’re able, make a small donation to keep our podcast going!
ANNOUNCEMENTS:
Steps for Sight Registration is open! It’s not to late to join us this month!
www.charityfootprints.com/SFS
Eye on Mental Health 2023 is now open for registration! Head to the site below to register!
Register at https://tinyurl.com/eyeonmentalhealth23
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
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Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Monday Feb 06, 2023
Monday Feb 06, 2023
A Cure in Sight is joined by omie, Kathy Doocy, co-author of The Happy Cookbook, The Simply Happy Cookbook, and The Happy in a Hurry Cookbook.
Kathy Doocy was previously the host of ESPN's Sidelines and worked at NBC. WHen Kathy and Steve got married and the kids came along, Kathy retired from her TV work to raise the family and preside as the Doocy family CEO and CFO, and she's enjoyed every single minute of it.
Steve and Kathy have Three grown children who moved out and now miss their parent's delicious home-cooked meals every day. they live in New Jersey.
Regarding the Happy Cookbook:
"The year before we started this project, Kathy was diagnosed with ocular melanoma, an unbelievably rare and aggressive form of eye cancer. She was lucky that they caught it early and she was treated by Dr. Carol Shields and her team of specialists at the Wills Eye Hospital in Philadelphia. during her very first examination, Dr. Shields told Kathy, "I am going to save your life," and she did.
During her recovery, while taking stock of her life as many do when they've gone through something that life-changing, Kathy vowed to make it her personal quest to leave her children a written record of the foods they grew up loving. They don't cook much now, but they will someday.
This will always be a part of Kathy's legacy to Peter, Mary, and Sally, that whereever they travel in their lives, they'll always have a printed road map to their mom's signature suppers, provided they will actually cook and not order takeout on Uber Eats."
ANNOUNCEMENTS:
Steps for Sight donations are still being gathered–share to help us fund research!
www.charityfootprints.com/SFS
Head to our site to register for a 5K Lookin’ for a Cure near you!
www.lookinforacure.org
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Monday Feb 20, 2023
Monday Feb 20, 2023
Kathy Doocy and Wendy Carpenter will discuss turning their talents into healing, and how they refused to allow ocular melanoma to limit their ability to practice their talents.
Monday Feb 20, 2023
Monday Feb 20, 2023
Jennifer Drew will present on coping with your diagnosis and your new normal.
Monday Feb 20, 2023
Monday Feb 20, 2023
Join for a discussion on various levels of spirituality and how we make meaning of the circumstances in our lives.
Monday Feb 20, 2023
Monday Feb 20, 2023
Anne Osborn demonstrates and teaches the "how to" behind meditation, and offers a variety of meditation tools to add to your toolbox for "taming your lizard brain" and why this is important in navigating an ocular melanoma diagnosis.
Friday Feb 24, 2023
Friday Feb 24, 2023
Join A Cure in Sight host, Danet Peterson, as well as 3 other omies for "Enucleation 101," part 1 of a 2 part episode release covering the varying experiences of enucleation of 4 patients, their tips for recovery, as well as their insights on the process as a whole.
Discussion of the prosthetic eye is not covered but we have plans to cover an ocularist and a panel of adjusting to the experience of having a prosthetic eye.
Panelists featured:
Clay Butler (primary enucleation)
Wendy Carpenter (enucleation after recurrence)
Danet Peterson (host) (enucleation after eye deterioration)
Alison Benjamin (primary enucleation)
ANNOUNCEMENTS:
Head to our site to register for a 5K Lookin’ for a Cure near you!
www.lookinforacure.org
Swing for Sight April 22, 2023
REGISTER for SWING FOR SIGHT TODAY:
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Tuesday Feb 28, 2023
Tuesday Feb 28, 2023
Join A Cure in Sight to briefly interview Yvonne, Presley, and Kenny; patients who are some of the “rare among the rare” or the RARE² in honor of Rare Disease Day. Yvonne, Presley, and Kenny show their stripes by expressing what navigating their journey with ocular melanoma has looked like–and how that has differed from the mainstream community.
Ocular melanoma is most commonly found in fair skinned, light eyed males over the age of 50 according to most statistics found online. These 3 patients demonstrate the statistics just don’t accurately depict those in our community who are here, living with OM, and who don’t “fit the mold” of the most common demographic diagnosed.
Meet Yvonne Loggins-Colemen, diagnosed in 2020 with ocular melanoma by sheer chance; rare among the rare as a woman of African American descent.
Meet Presley Jackson, diagnosed at the age of 13 with ocular melanoma, experiencing childhood eye cancer, and adjusting to the loss of vision and a great deal of uncertainty, while living as full of a life as a teen as he possibly can.
Meet Kenny Rains, diagnosed at the age of 29, far younger than most, and tackling life with new passion and perspective after navigating an immense mental health struggle that his diagnosis triggered.
ANNOUNCEMENTS:
Head to our site to register for a 5K Lookin’ for a Cure near you!
www.lookinforacure.org
Swing for Sight April 22, 2023
REGISTER for SWING FOR SIGHT TODAY:
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Thursday Mar 09, 2023
Thursday Mar 09, 2023
Join A Cure in Sight to discuss systemic therapies for metastatic uveal melanoma with Dr. Meredith McKean.
We discuss when to use systemic therapies, what is out there besides KIMMTRAK, how to determine a path forward for introducing systemic therapies in metastatic management
McKean received her bachelor's degree from Iowa State University, where the promising athlete ran cross-country and track. During fellowship, McKean studied biomarkers for response to immune checkpoint inhibitors (ICI) in metastatic melanoma, earning her an American Society of Clinical Oncology 2017 Young Investigator Award. She now serves as the director for the Melanoma and Skin Cancer Research Program at the Sarah Cannon Research Institute at Tennessee Oncology.
ANNOUNCEMENTS:
Head to our site to register for a 5K Lookin’ for a Cure near you!
www.lookinforacure.org
Swing for Sight April 22, 2023
REGISTER for SWING FOR SIGHT TODAY:
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Monday Mar 20, 2023
Monday Mar 20, 2023
Join A Cure in Sight and Dr. Dalvin and Dr. Moser for this special Rare Disease Day Webinar, recorded live on Feb 28, 2023.
Are you RARE²? Ocular Melanoma affects 6 per million people each year. Of those diagnosed, children and minority communities (people of color, indigenous peoples, etc.) make up an even smaller percentage of the patient population.
Dr. Lauren Dalvin and Dr. Justin Moser, who attended medical school together, were part of a discussion on the importance of awareness for rare diseases, and how they got involved in the work of ocular melanoma specifically.
Dr. Lauren A. Dalvin is a full-time Ocular Oncologist and Associate Professor of Ophthalmology with a joint appointment in Medical Oncology at Mayo Clinic, Rochester, MN.
Dr. Justin Moser is a medical oncologist and hematologist and associate clinical investigator at HonorHealth Research Institute. He treats patients in the area with uveal melanoma and other rare diseases.
They discuss questions such as:
What is it like being a physician of those with rare diseases?
Why is a day like rare disease day an important day to spread awareness?
Why did you get into ocular melanoma? What drew you as a physician to rare disease?
How do you see the rare disease landscape changing in the future?
What are registries and biobanks? Why are they important for rare diseases? PLUG FOR INSIGHT REGISTRY , living library, what is a bio bank?
How often do you treat someone in a minatory group (like children, people of color, potential obstacles they face)?
How do you reassure a patient with rare diseases that they will receive good care in your practice?
This webinar is made possible by contributions from the EveryLife Foundation for Rare Diseases. The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures.