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Join A Cure in Sight, an ocular melanoma foundation, in sharing stories + raising awareness for OM patients and their families. Here we share information and insights on treatment, research, and living with ocular melanoma.
Episodes
Thursday Apr 13, 2023
Thursday Apr 13, 2023
Join A Cure in Sight host, Danet Peterson, as well as 3 other omies for "Enucleation 101," part 2 of a 2 part episode release covering the varying experiences of enucleation of 3 more patients, their tips for recovery, as well as their insights on the process as a whole.
Discussion of the prosthetic eye is not covered but we have plans to cover an ocularist and a panel of adjusting to the experience of having a prosthetic eye.
Panelists featured:
Julie LeBlanc
Lindsay (lind-SAY) Brown
Kristen MacDonald
Please share these 2 episodes with anyone considering Enucleation as a treatment path and be sure to subscribe to our podcast and newsletter to stay up to date!
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU!
May 20, Raleigh, NC
May 21, Washington DC
June 10, Minneapolis, MN
June 11, Philly, PA
July 8, Seattle, WA
July 15, Palo Alto, CA
August 6, NYC/Brooklyn/Jersey area
Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!!
www.lookinforacure.org
Swing for Sight April 22, 2023
REGISTER for SWING FOR SIGHT TODAY:
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Friday Apr 21, 2023
Friday Apr 21, 2023
Join A Cure in Sight and Lisa Durbin, spouse and caregiver to Mike Durbin, an ocular melanoma patient in the metastatic community. The role of caregiver is discussed, as well as the toll this can take on a relationship, on the family as a whole. Tune in for an incredibly insightful and validating episode.
You can connect with Lisa and Mark directly to discuss their alternative approaches to metastatic management and glean from their hopeful story here: https://www.facebook.com/ldurbin1
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU!
May 20, Raleigh, NC
https://bit.ly/3KnyTwp
May 21, Washington DC
https://bit.ly/3ZotGIZ
June 10, Minneapolis, MN
https://bit.ly/3o5Mwr2
June 11, Philly, PA
https://bit.ly/3U4hsUH
July 8, Seattle, WA
https://bit.ly/3TTgvP3
July 15, Palo Alto, CA
https://bit.ly/3lRFi9D
August 6, NYC/Brooklyn/Jersey area
https://bit.ly/40KUtQH
Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!!
www.lookinforacure.org
Swing for Sight April 22, 2023
REGISTER for SWING FOR SIGHT TODAY:
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Monday Apr 24, 2023
Monday Apr 24, 2023
SPECIAL ANNOUNCEMENT!
First up, it’s our 10th anniversary this month! All month long we’ve been sharing challenges on social media to invite you to share with 10 people about ocular melanoma. From now until April 30th, you can also be part of the YOU + 10 challenge for our Lookin for a Cure Walks!
HOW IT WORKS?
- BEFORE April 30th, register for a Lookin' For a Cure 5k walk near you, or register virtually. Walks are happening between May and December.
- Name your team (the chance to do this is on the first page of the sign up)! Send a link to your team to family and friends to register with you!
- The 3 people with the largest teams will receive a gift card as a prize! Winners will be announced in the first week of May!
REGISTER AT www.lookinforacure.org OR https://runsignup.com/w/ACureinSight
You can obtain a copy of the first ever annual report for 2022 here: https://view.flodesk.com/pages/6435ce55c842f57cebceea87
WALKS BELOW:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU!
May 20, Raleigh, NC
https://bit.ly/3KnyTwp
May 21, Washington DC
https://bit.ly/3ZotGIZ
June 10, Minneapolis, MN
https://bit.ly/3o5Mwr2
June 11, Philly, PA
https://bit.ly/3U4hsUH
July 8, Seattle, WA
https://bit.ly/3TTgvP3
July 15, Palo Alto, CA
https://bit.ly/3lRFi9D
August 6, NYC/Brooklyn/Jersey area
https://bit.ly/40KUtQH
Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!!
www.lookinforacure.org
Swing for Sight April 22, 2023
REGISTER for SWING FOR SIGHT TODAY:
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Friday Apr 28, 2023
Friday Apr 28, 2023
Join A Cure in Sight and Dr. Basil Williams to discuss Pros and Cons of Radiation to the Eye.
Treatment options are covered, based on factors such as eye tumor location, size, possibility of retaining vision. Side effects of various radiation based treatments are discussed. The impact of a biopsy at time of treatment or before is discussed.
Tune in and be sure to subscribe and share, plus make a contribution to keep our podcast going!
Basil K. Williams Jr. MD is an Associate Professor of Ophthalmology at the Bascom Palmer Eye Institute, where he specializes in ocular oncology and vitreoretinal diseases and surgery. He completed his ophthalmology residency and vitreoretinal surgery fellowship at Bascom Palmer and served as a chief resident and co-director of ocular trauma there as well. He then completed an additional fellowship in ocular oncology at Wills Eye Hospital. Dr. Williams grew up in the Bronx, NY and received his Bachelor of Arts Degree from Yale University before attending The Chicago Medical School. Prior to joining Bascom Palmer, he was the Director of Ocular Oncology at the University of Cincinnati and held the Mary Knight Asbury Endowed Chair of Ocular Oncology.
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU!
May 20, Raleigh, NC
https://bit.ly/3KnyTwp
May 21, Washington DC
https://bit.ly/3ZotGIZ
June 10, Minneapolis, MN
https://bit.ly/3o5Mwr2
June 11, Philly, PA
https://bit.ly/3U4hsUH
July 8, Seattle, WA
https://bit.ly/3TTgvP3
July 15, Palo Alto, CA
https://bit.ly/3lRFi9D
August 6, NYC/Brooklyn/Jersey area
https://bit.ly/40KUtQH
Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!!
www.lookinforacure.org
Stay tuned for registration announcements for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023!
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Sunday May 07, 2023
Sunday May 07, 2023
Join A Cure in Sight and Dr. Maureen Sanger to discuss protecting your mental health as a patient with ocular melanoma.
A few key points from this episode:
"Switch focus from the what if to what is?"
"Grief is something we tend to."
When in doubt, let it RAIN:
R - Recognize emotions
A - Allowing emotions to be felt/ accepting them as what is
I - Inspect/Investigate your emotions "why am i feeling this way?"”
N - Nurturing yourself - "what do I NEED right now?"
Great books to read:
When Life Gets Hard by Russ Harris
When Things Fall Apart by Pema Chodron
Maureen Sanger, PhD is a psychologist with Tennessee Oncology providing counseling to cancer patients and survivors. She received her doctorate in clinical psychology from Vanderbilt University and trained at MD Anderson Cancer Center. Prior to joining Tennessee Oncology she was an Assistant Professor of Pediatrics at Vanderbilt University Medical Center where she worked with the cancer and sickle cell disease programs.
Don't forget to subscribe and continue to listen in!
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU!
May 20, Raleigh, NC
https://bit.ly/3KnyTwp
May 21, Washington DC
https://bit.ly/3ZotGIZ
June 10, Minneapolis, MN
https://bit.ly/3o5Mwr2
June 11, Philly, PA
https://bit.ly/3U4hsUH
July 8, Seattle, WA
https://bit.ly/3TTgvP3
July 15, Palo Alto, CA
https://bit.ly/3lRFi9D
August 6, NYC/Brooklyn/Jersey area
https://bit.ly/40KUtQH
Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!!
www.lookinforacure.org
Stay tuned for registration announcements for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023!
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Friday May 19, 2023
Friday May 19, 2023
A Cure in Sight is joined on The Eye Believe Podcast by Dr. Mohammed Dar, who is the Chief Medical Officer of Immunocore. Tune in to learn more!
In this brief discussion, Dr. Dar shares the origin and history of Immunocore, how they got started, and how their field came to include uveal melanoma.
To access the lists of currently recruiting clinical trials relevant to uveal melanoma, head to clinicaltrials.gov and search uveal melanoma.
Thank you again to Immunocore for their continued work for patients with rare diseases like Uveal Melanoma.
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved!
June 10, Minneapolis, MN
https://bit.ly/3o5Mwr2
June 11, Philly, PA
https://bit.ly/3U4hsUH
July 8, Seattle, WA
https://bit.ly/3TTgvP3
July 15, Palo Alto, CA
https://bit.ly/3lRFi9D
August 6, NYC/Brooklyn/Jersey area
September 23, Denver, CO
https://runsignup.com/Race/CO/Denver/LookinForACureDenver
Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!!
www.lookinforacure.org
Stay tuned for registration announcements and hotel registration for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023!
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
Friday May 26, 2023
Friday May 26, 2023
Join A Cure in Sight as they bring you some brief mini interviews from attendees and presenters at AACR, the American Association of Cancer Research, hosted in Orlando in April 2023.
Dr. Meredith McKean and Dr. Liya Xu share some unique insights on uveal melanoma research that is happening now.
Thanks for tuning in! Don't forget to subscribe and continue to listen in!
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved!
June 10, Minneapolis, MN
https://bit.ly/3o5Mwr2
June 11, Philly, PA
https://bit.ly/3U4hsUH
July 8, Seattle, WA
https://bit.ly/3TTgvP3
July 15, Palo Alto, CA
https://bit.ly/3lRFi9D
August 6, NYC/Brooklyn/Jersey area
September 23, Denver, CO
https://runsignup.com/Race/CO/Denver/LookinForACureDenver
Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!!
www.lookinforacure.org
Stay tuned for registration announcements and hotel registration for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023!
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Friday May 26, 2023
Friday May 26, 2023
Join A Cure in Sight in an interview with Dr. David Ancona, the founder of Mexico's pioneer Eye Cancer Institute.
In this episode, Dr. Ancona and podcast host, Danet Peterson discuss the history of the Eye Cancer Institute in Mexico, the treatments they have available, and the effort it has taken to establish an eye cancer institute in Mexico.
Their locations are in Monterry, Mexico, as well as Guatelajara, Mexico. They treat patients from all across Mexico, Central America, Southern America, and in some cases near the souther USA border. Their focus is to bring accessible, patient driven care to patients navigating eye cancer of any kind.
You can find them on social media to connect and learn more at www.eyecancerinstitute.org.
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU!
May 20, Raleigh, NC
https://bit.ly/3KnyTwp
May 21, Washington DC
https://bit.ly/3ZotGIZ
June 10, Minneapolis, MN
coming soon!
June 11, Philly, PA
https://bit.ly/3U4hsUH
July 8, Seattle, WA
https://bit.ly/3TTgvP3
July 15, Palo Alto, CA
https://bit.ly/3lRFi9D
August 6, NYC/Brooklyn/Jersey area
https://bit.ly/40KUtQH
Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!!
www.lookinforacure.org
Swing for Sight April 22, 2023
REGISTER for SWING FOR SIGHT TODAY:
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
The Eye Believe Podcast is brought to you by Castle Biosciences. Castle Biosciences is a leading diagnostics company improving health through innovative tests that guide patient care. The Company aims to transform disease management by keeping people first: patients, clinicians, employees and investors.
This podcast was hosted by Danet Peterson and produced by Page Fronczek.
Tuesday Jun 06, 2023
Tuesday Jun 06, 2023
Join A Cure in Sight host Danet Peterson to bring you our second quarterly webinar this year; focused on navigating clinical trials. Clinical trials research nurses Kelly Goddard and Shahnaz Singh-Kandah discuss the process of clinical trials registration, locating centers, and offer invaluable resources for patients navigating the trial space.
CLINICAL TRIALS 101 PDF
Checklist for prioritizing/recommending studies:
-Data – what’s most likely to help?
-Whatever we do first – we leave as many doors open down the line to make sure it won’t preclude you from other treatment
-What is the impact on the trial? Side effects, logistics. Biopsies, PKs, etc.
-Feasibility - travel
-
Questions:
-Is there any published data?
-How long has the study been open ?
-Is there placebo involved?
-Is there a stipend for commuting costs?
-What are common side effects that you have noticed in recent patients?
-Are there any patients at your site currently participating?
-Is this my best option right now?
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved!
June 10, Minneapolis, MN
https://bit.ly/3o5Mwr2
June 11, Philly, PA
https://bit.ly/3U4hsUH
July 8, Seattle, WA
https://bit.ly/3TTgvP3
July 15, Palo Alto, CA
https://bit.ly/3lRFi9D
August 6, NYC/Brooklyn/Jersey area
September 23, Denver, CO
https://runsignup.com/Race/CO/Denver/LookinForACureDenver
Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!!
www.lookinforacure.org
Stay tuned for registration announcements and hotel registration for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023!
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org
Tuesday Jun 06, 2023
Tuesday Jun 06, 2023
Join A Cure in Sight host Danet Peterson to interview Starla Hadlock-Allen, an ocularist in Mesa, AZ whose family has a unique history in the field of ocular prosthetics. Hear their story, and learn about the certifications required to become a board certified ocularist; a qualification she and other ocularists strongly urge those seeking prosthetic eye creation care to look for in their ocularist team.
A diplomate member of the American Society of Ocularists, Starla received her BA from Brigham Young University and completed her internship with her father, John, in 2007. She and John have been working together for over 20 years. Starla and her husband, natives of Arizona, and their children live in Mesa and enjoy serving their community.
Learn about their family practice here: https://www.eyeconcern.com
ANNOUNCEMENTS:
5K SITES ARE OPEN FOR REGISTRATION NEAR YOU! Start your team and bring your community to get involved!
June 10, Minneapolis, MN
https://bit.ly/3o5Mwr2
June 11, Philly, PA
https://bit.ly/3U4hsUH
July 8, Seattle, WA
https://bit.ly/3TTgvP3
July 15, Palo Alto, CA
https://bit.ly/3lRFi9D
August 6, NYC/Brooklyn/Jersey area
September 23, Denver, CO
https://runsignup.com/Race/CO/Denver/LookinForACureDenver
Head to our site to register for a 5K Lookin’ for a Cure near you for the remainder of the year!!
www.lookinforacure.org
Stay tuned for registration announcements and hotel registration for the Eye Believe Survivorship Seminar happening in Seattle, WA, Sept 8-9, 2023!
Subscribe to the newsletter to stay in the know
Newsletter link
Email contact@acureinsight.org for questions regarding any upcoming events!
*********
Be sure to follow us on Facebook, Twitter, Linked In, or Instagram @acureinsight, for more stories, tips, research news, and ideas to help you navigate this journey with OM!
*A Cure in Sight is a 501c3 organization. All donations made can help fund our podcast to educate patients, fund research, aid patients, and more!
Donate $10 $15 $20 today to help A Cure in Sight in their quest to find a cure.
Contribute via PAYPAL OR VENMO or reach out directly to contact@acureinsight.org