The Eye Believe Podcast

Eye on COOG | What's New in Uveal Melanoma Risk Reports?

👁️ Eye on COOG – Special Eye Believe Mini-Seminar (Recording)

📅 Recorded on December 6, 2025

🔗 Learn more or register for future events: https://www.acureinsight.org/education-events

If you missed the live session — or want to watch it again — you're in the right place!

This recorded webinar breaks down the latest updates from COOG 2 uveal melanoma studies and explains what they mean for GEP results, PRAME status, and mutation testing.

Our expert speakers guide patients and caregivers through understanding eye tumor biopsy reports in a clear, supportive way.

🌟 Featured Speakers Kat Alsina – Castle Biosciences

Dr. Amy Schefler

Dr. Basil Williams

 

🎤 Hosted by Danet Peterson

 

💙 Presented by Castle Biosciences

 

🤝 Sponsored by Immunocore • Aura • Delcath • IDEAYA Biosciences

 

✨ Watch, learn, and empower yourself with knowledge about your uveal melanoma journey.

✨ Feel free to share this resource with others who may benefit.

#EyeOnCOOG #EyeBelieve #UvealMelanoma #AcureInsight #CastleBiosciences #OcularOncology #COOG2 #PRAME #GEP #MutationTesting #PatientEducation

Why Rachel Sindaco Says She’s Lucky to Have MS | The Eye Believe Podcast

In this inspiring episode of the Eye Believe Podcast, we welcome author and advocate Rachel Sindaco, whose journey through Multiple Sclerosis (MS) and Ocular Melanoma (OM) reshaped her life in unimaginable ways—and ultimately saved it.

Rachel maintains a remarkable positive outlook, openly sharing how she considers herself lucky to have MS. It was her MS diagnosis that led to increased medical monitoring, allowing her ocular melanoma to be caught early—a discovery that may have saved her life. Without MS, Rachel believes her cancer might have gone undetected until it was too late.

Her book, From a Kick in the Head to a Kick in the Ass: My Involuntary Journey with Multiple Sclerosis and Ocular Melanoma, is a candid, often humorous, and deeply moving memoir about navigating serious illness, reframing adversity, and finding gratitude in the most unexpected places.

This conversation is a powerful reminder that perspective matters, early detection saves lives, and even the hardest diagnoses can carry unexpected gifts.

📘 Order Rachel’s book now to receive your copy by Christmas! Support the podcast by purchasing through our Amazon affiliate link: 👉 https://amzn.to/44un94Q

Shop the ACIS affiliate store- https://acureinsight.org/shop/amazon-affiliate-products/

Steps For Sight 2026 with Kristen MacDonald | The Eye Believe Podcast

🎙️ Steps For Sight 2026 with Kristen MacDonald | The Eye Believe Podcast

 

In this episode of the Eye Believe Podcast, we’re talking all about Steps For Sight 2026, A Cure In Sight’s annual fundraiser supporting the ocular melanoma community and funding research toward a cure.

 

Steps For Sight runs January 1–31, and participants commit to walking 7,000 steps a day to honor the 7,000 people diagnosed with ocular melanoma each year.

 

Hosts Danet and Megan are joined by ocular melanoma patient Kristen MacDonald, founder of KMac Fights Back—the top fundraising team year after year. Kristen shares why she participates in Steps For Sight, how she successfully grows her team, and why this challenge is so important to the OM community and advancing research.

 

🚨 Registration opens TODAY (12/21)!

👉 Sign up now and download the Charity Footprints app to track your steps: https://www.charityfootprints.com/stepsforsight/

 

✨ Whether you’re a patient, survivor, caregiver, or supporter, this episode will inspire you to move with purpose and help step us closer to a cure.

🔔 Subscribe, 👍 like, and 💬 comment to support the OM community and stay connected with A Cure In Sight.

Turning Loss Into Impact with Megan Morelli | The Eye Believe Podcast

In this powerful episode of the Eye Believe Podcast, we’re joined by Megan Morelli, who shares the story of her mother, Tami Sulistyo, an ocular melanoma patient whose legacy continues to inspire meaningful change.

 

Following Tami’s passing, Megan and her family found purposeful ways to honor her life, strength, and impact—including the creation of the Tami Sulistyo Memorial Research Grant. Through this grant, Tami’s legacy lives on by supporting vital ocular melanoma research and helping move the field forward.

 

In this conversation, Megan discusses:

How her family transformed grief into action

What it means to create a memorial research grant

Practical and impactful ways individuals and families can honor loved ones while advancing medical research

Whether you’re seeking inspiration, guidance on making a difference, or ways to honor someone you love, this episode offers heartfelt insight and hope.

 

👉 Learn more about the Tami Sulistyo Memorial Research Grant and how you can make an impact: https://give.arvofoundation.org/e/B90Oaw?vid=1nw87v

 

💙 Thank you for supporting ocular melanoma research and the Eye Believe Podcast.